I call [what happened to Charlie] a “bioethical aggression,” By which I mean that the value beliefs of mainstream Bioethics and the medical intelligentsia are being imposed on people who have a more traditional sanctity of life value system. The “quality of life ethic” is now aggressive. It’s not just these doctors saying, “This is against my ethics to keep this baby alive because I don’t think this is right for the baby.” They’re saying that the parents don’t have a right to make a different choice, and that’s an aggressive act. It is expanding the power of Bioethics, doctors, and courts, into areas of intimate decision making and family life where they do not belong.
This article is a great analysis of what’s happening in the UK with this court decision to allow Charlie Gard to die against the baby’s parent’s wishes.
It’s a lesson for us in the U.S.